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Termination of heart transplant program at OHSU (Oregon Health & Science University)

The advanced heart failure/heart transplant program at OHSU (Oregon Health & Science University) is being terminated because of the hubris of the head of cardiology, Dr. Joachim Cigarroa. Problems started last September when Dr. Cigarroa was appointe

Protein leakage in 24 hrs urine sample.

Hello Everyone,

On 17 the August 2018. I have completed my 1 Year post kidney transplant. All report was almost good but creatinine and 24 hrs urine both are showing abnormal value. Creatinine is 1.54 and there is leakage of protein in 24 hrs sample u

Taking IVIG treatment

For the second time in 5 years I am being treated with IVIG to help bring my immune system from nothing to something. Has anyone else had to do this? The treatment gives me headaches from )(*) if you know what I mean. Just wondering if others have ha

Dealing with a denervated heart

Hi all,

I had a heart transplant in January 2017, 12 years after I was diagnosed with cardiomyopathy. I have ups and downs like everyone, but had one specific question. Does anyone have any coping suggestions or tips for dealing with a denervated hea

Heart transplant recovery

Hello, I received a heart transplant on April 5, 2017. Initially I thought my recovery was going pretty well but in the last couple of months I have regressed. Most days I have barely enough energy to leave the house. My mind is fuzzy and generally f

Feeling breathless

Hello Everyone,

I am nearly 2 years post tx pt. New year started with new hopes and joys . This year brought bad flu with it . Everyone second person in london has got cough and cold . It is taking ages to recover . I caught this cold 2-3 weeks ago. I

My Heart Transplant Story

https://news.heart.org/after-heart-stopped-valentines-day-texas-man-needed-new-heart/

Flu Precautions

The flu epidemic, as you all are aware, is just getting worse.  I'm curious what kinds of precautions you are taking regarding exposure to this deadly disease.  I am a heart transplant recipient of 9 years, received the flu shot Aug 30th and am dilig

What can I do to help my Husband through this?

I love my husband to pieces. But the one thing is that if he isn't really comfortable with someone, he won't ask for help. I need some ideas of how to make this whole journey easier on him as well. Is there anything that I can do to help him the day

What do I pack in my hospital bag?

I've been racking my brain lately and looking up different ideas about what I should pack  in my "go bag" and what I shouldn't. I am curious to know, for those of you who have or had one, what did you pack? Were there things you didn't need? Was ther

The day to day of transplants

Hi all,
Members of Transplant Friends might be interested in the 'Not Just the Incredibles' – an artistic research project that was undertaken to explore the everyday in organ transplantation by talking with transplant patients and lab staff working i

Can I donate other organs if I'm a (kidney) transplant recipient?

I can't find any information about this. I've had two kidney transplants and would love to donate an organ to someone, part of my lung or liver. Aside from long-standing anemia and some kidney issues (not disease per se but fluctuating GFR), I'm tech