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Fungal Pneumonia (invasive aspergilosis)

In August I was infected with fungal pneumonia. I recovered after about 2 weeks of anti fungal medication through IV and 8 weeks through oral route. During the course of treatment and up to now I have been taken off MMF. Prednislone dose was increase

Monoclonal antibodies shots

Hi. I have some covid questions. Are monoclonal antibody shot and infusion same or different?. And is it ok to take monoclonal antibodies and molnupiravir at the same time?  When they are administering the infusion or shot and for some reason if it d

Evusheld Booster

Hi Friends  I am due for my 6 month Evusheld booster this month.  I just received notice that my Transplant Clinic will not be offering this, as the new CDC guidelines in October suggested it will soon not be effective against new variants.  When I r

Lymphnodes

Hi Guys,I hope all of you are wellI am a kidney transplant patient for 12 years now. I found a lymphnode under my armpit 3-4 days ago and extremely worried.I did my fbc and other tests.My leucocyte count was 14.45 and neutrophils 11.66.The doctor say

loss of memory as result of prograf ?

Hello everyone.

Hope you are all well. 
Has anyone on prograf found that the memory is not as good any more and you have to think what you want to say.?

I am 6 and half years post second kidney transplant and find remembering things becomes difficult.Ap

Sudden drop in Tacro level..thoughts?

Hi Everyone  I hope all of you are doing well.  I am 5 years post kidney tx.  My Tacro has consistently come back 5-6.  I had a trough today, and it dropped to 3.2!  I have not missed any doses,  I have not taken any new medications.  I know Tacro ca

Dosage for cellcept or myfortic

Hi, how is everyone from the different parts of the world?

Again, I have a concern, my SGPT liver enzyme still elevated. I am on ursofalk today. 

I have read that decreasing the cellcept or myfortic will help the liver improve. When are they going to d

Any advice for leg swelling/edema several years post transplant?

Hello -- I'm about 7 years post kidney transplant, and while my numbers are steady, over the last couple of years I've developed significant swelling (pitting edema), and I was wondering if anyone has a similar problem or knows of a way to address it

Evusheld

Hello Friends.  Has anyone yet received Evusheld injections for pre exposure prophylaxis for Covid?  I am 5 years post first kidney transplant and doing well. My transplant team just sent out a letter encouraging this.  I was just wondering if anyone

Immunosuppressants and blood pressure medications

 Is it ok to take immunosuppressants and blood pressure medicines together?

Kidney Transplant - Prednisone pain

I had a transplant in 2012. I take Prednisone 5 mg apart from Tacrolimus.

I get excruciating body pain about one hour after taking prednisone. The pain will dissipate around 6 or 7pm.

Does anybody know how to mange this?

THanks

Overcoming COVID?

Hi All:

I am 6 1/2 years out from a successfull kidney transplant and have been great in 'isolating' or just going out at odd times.  Neither my wife or I have had COVID.  I am curious if any of 'us' (transplant patients) were unlucky enough to catch

Low Tacro Signs

Merry Christmas and Happy Holidays!  Could someone please remind me of the signs and symptoms of low Tacro levels?  I just celebrated my 5 year post kidney transplant!  I named him Billy the KID-ney.  Thank you and God Bless everyone.

safest immunosuppressive drug

This is for those specially who are dependent on steroid prednisolone. I have been on prednisolone for two years until recently when I was changed to the steroid Budesonide. My health has transformed greatly. My blood pressure and blood sugar normali

spike in blood sugar after prednisolone

hey all

what do you do to deal with spike in blood sugar after prednisolone? I am still taking 15 mg after 5 years of transplant! NO tacrolimus. Only steroid and imuran.

Thanks

Isolated from Covid 19 - still?

Hi folks - is there anyone else out there who is still isolated (hiding out) to avoid getting Covid 19?  I am 20 years post pancreas-kidney tx.  I feel like I could already be on "borrowed time" so I'm doing all I can to avoid getting Covid.  Is ther

how many medications

How many different kinds of medications are you taking ? I take 8 different kinds: immunosuppression + metabolic syndrome + vitamins

Thanks

10 Year of Kidney transplant

Today I completed big milestone - 10 year of my kidney transplant.   Thank you all for helping me with my questions.

Looking forward to share experience with you all. 

Take care everyone. 

High tacrolimus level after becoming vegan

I became hard-core vegan in June 2021 for my health, and my tacrolimus level has doubled for no reason I can figure out.  My doc is adjusting my dose, but if anyone has experience with eating a vegan diet and having high tacro levels, I'd like to kno

Low Bicarbonate levels

Hello Friends, 

I am running low Bicarbonate levels since last 3-4 months, I am already taking sodoum bicarbonate 650mg - 3 times a day. Still level is not going up. 

Have you ever faced this issue ? Any suggestions ?

Thanks

Amit