Hey everyone. I'm 27. I just received a kidney and pancreas transplant in December 2017. It's been about 5 months since transplant. I'm now having issues with my cmv level raising for the first time. They are wanting me to do the research with the…
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Hi All,
At the risk of "opening a can of worms," I will be posting and seeking your opinion about the new American Health Care Act or "Trump Care" as it makes it's way through Congress. This bill has passed through the House of…
Read more…2016 and 2017, three of my highschool friends and I turned 60...trying not to pay attention to numbers is challenging for those of us whose lives depend on "good" numbers. Anyway, back to my HS friends. We decided to go to Hawaii this April to…
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Hi all - I got in touch last year about an art project I’m working on that explores the long-lasting impact of transplantation. We previously did a couple of workshops that were fantastic, but I’d like to now follow them up with some one-to-one…
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Dear Friends
We are together. Let us uplift our community and be thankful. In spite of what I experienced. Here is the scoop.
A powerful doctor kicked me out of the CF program. The doctor did this when I asked
a question…
Read more…I started this year with a new job here in Berlin. I was looking forward to this. We moved here in December 2014. I had no idea what will be happening in this year and what was lying ahead.
My Sickness – First Giant
I became sick and…
Read more…In Mid February 2015 I became sick with flu which turned over into lung infection. On 10th March I was admitted to hospital. I went through so many tests that we lost count. The doctor’s diagnosis was "Unknown Acute Liver Failure" as they could…
Read more…I just wanted to write to share some good/interesting news, in case it might be relevant for anyone here struggling with post-transplant anemia. I had my second transplant over two years and I've only ever been able to reach a hemoglobin of…
Read more…Hi All,
UCSF is looking for support and signing up possible ESRD candidates for the implantable artificial kidney program. Though we all thought this might never happen, it is! We are witnessing a great leap in organ…
Read more…In case you were wondering, here are some of the most deadly bacteria/viruses that have set up shop in our world.
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Hi, Im dropping in to say hello. Its been a long time. So much so that I dont recognize most of the names here. That is a good thing as it seems many are reaching out for support. I have been listed for transplant of the liver for well over…
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