Next month (June) it will be 4 years since my kidney transplant. The donor was my wife. Everything has been running like a top, except for a lot of skin cancers popping out on my face and scalp. Late last year they seemed to become more frequent and more agressive. For instance in the period December -February I had 5 MOHS surgeries, one nearly taking my right ear off. My head looks as dimpled as a golf ball with all the surgeries. I have been seeing a dermatologist every 3 months, and most of the the time there is a biopsy, and that invariably results in a referral to a MOHS surgeon. The ear surgery required 7 slices and the whole ordeal took over 12 hours.
Communicating this to my nephrologist, I was referred back to my transplant team who suggested I stop my CellCept. My present prograf dose is 1mg twice a day, giving me a 4.1 tacrolimus level. This was 2 months ago, and luckily, my creatinine remains under 1. 0.8 and 0.9 respectively. I am getting my labs done monthly now and hopefully can maintain a healthy kidney without the CellCept going forward.
I don't know what they have planned should the kidney start to go south.
I remain on 5mg of prednisone daily, and although there is no evidence of "moon face" I have developed osteoporosis. The prednisone effect on my tendons has also caused an inoperable torn rotator cuff in my right shoulder.