October 2017, I started a regimen of Herbal remedies to treat Cystic Fibrosis - correcting and potentiating CFTR. I felt that if I could correct the defective gene that causes CF then my diagnosis of Chronic Rejection would either keep me stable or improve my health.
Before starting my daily intake of TauriNac and Indrepta (herbs and amino acids) I tried to treat the Chronic Rejection with Solumedrol treatments. Looking back, I wish I only tried one treatment. I went through higher viral loads of Epstein Barr Virus and then developed Asperglilious because of the Steroids (currently I am steroid free -my choice).
Prior to my diagnosis of C.R. I was taking a low dose of Tumeric as compared to today. I was also taking NAC which is also part of the amino acids that I take today. Looking back, prior to getting a bad cold (virus) I was not eating that healthy as I normally do and stopped taking Tumeric and NAC.
Fast forward- Since Oct 2017 when I started taking Indrepta and TauriNac, my CT scan of the Chest healed, Pulmonary Function tests remain stable, my oxygen saturation is now at 98-99 during workouts for 25 minutes, my A1-C dropped from 6.2 down to 4.8, I no longer have EBV and Aspergillus and my last sputum test revealed negative to Psuedomonas which I battled since the age of seven years old. I am going to repeat this test to make sure. My appetite has increased, my muscle tone looks much better and overall, I sleep well.
I will continue to stay on Indrepta and TauriNac and a few other herbs that I am recently taking. I would have never imagined that I would even talk about herbs. Now that I am reading more about transplant and herbs there are other patients trying them for their conditions.
Bottom line, I felt desperate to do something. This is my second transplant and I want it to last as long as possible. I know how difficult it was with my first transplant and looking back, I see how medical science has changed.
Indrepta and TauriNac are gaining popularity with COPD patients as well.