23 years post liver transplant and for the last four I have been struggling. For 18 years I was on cyclosporine but became magnesium deficienct. Over the last four years the clinic has changed my medication as cyclosporine depleted my magnesium too much. They said tacrolimus would do the same. So I tried sirolomus. I could not tolerate that. Then cellcept and my stomach was so bad so they switched me to myfortic. Now after two years I started having such terrible bone pain and tremors. Even on the lowest possible dose.
i am quite frightened and don’t know what to do. Is there anyone on a very minimal dose of medicine, maybe once a week or a few times a week? I don’t think I can be completely off of immune suppression drugs. Is there anyone else who has become sensitive to the drugs?
Any feed back is appreciated.