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Joint pain

18 months post Liver transplant with severe joint pain in hips all the time and knees when bearing any weight for even a short time. 
Rhuematologist says " nothing  can be done, you have "Polyarthritis".

14 weeks of Physical Therapy to no avail. I read all I can find but the only comparable diagnosis is Post liver transplant of 2  to 3 years.

Any input would be appreciated.

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  • I am 4 years post this month but after 2 years they added Myfortic, for safety, it blew out my immune system and left me with very bad Schingles, and about 18 months ago upgrades chronic nerve pain, and I do get those sharp pains.  Mine is not joint but related to my reaction to immuno.

    It is a challenge but being a Tx patient - I can't complain.  Disabled is better than the other option lol.  Of course these pain docs have no clue what to do, and it is just a challenging disease.  I mostly care that they acknowledge it as chronic pain is not visible.

    Good luck.

     

  • Hi Don,

    I'm not sure if this helps but here's a link to the National Institute of Health's website of articles.

    NIH Info

    Rapid multifocal chondrolysis after liver transplantation in four patients
    Favourable clinical outcomes achieved with liver transplantation may be jeopardised by corticosteroid‐induced osteoarticular complications, such as o…
    • I read that article and all of the studies were of transplant patients 2 to 3 years post transplant. My severe pain started 6 months post transplant.
      All signs to point to the multi focal chondrolitis.

      I appreciate your input. I won't give up until I know!

  • I have not experienced this; however, I  did have mild joint pain when I was on Prednisone and even worse for a short time after being taken off of it.  Just something to consider.

    I read about polyarthritis as I had never heard the term before.  It appears this is a disease that is not well known.  For me, I would seek another opinion.  I am not a fan of "nothing can be done" and someone else may be able to help in some way.

    I hope you find some answers.  I can only imagine the discomfort.

    • I haven't been able to work during this time and am a prisoner of sorts to the VA. Don't get me wrong, there are great Doctors and wonderful facilities but second opinions do not seem to be on the table. I requested one earlier this week to no avail.

      I appreciate the reply a lot and thanks for the advice.

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