Hi my name is Kelly and I have polycystic kidney disease (PKD) . My GFR is 12 and creatinine 3.8 and I would be starting dialysis if not for the surprise visit I got at work about 6 weeks ago from a man who told me he is my donor! All matched and approved (I was approved last year). I was so shocked, I couldn't speak - shocked and excited! I don't know my donor but he heard that I needed a donor through a newsletter of a club my husband belongs to and decided to make this incredibly generous gift to me. The surgery is scheduled for April 27th!
I don't get to meet with my surgeon until a week or a few days before the transplant. I have so many questions and it's making me crazy! My biggest one is that I need to let my boss know that I will be out but I have no idea what to tell him! I Googled 'kidney transplant recovery time' and it says anywhere from 3 to 10 weeks! I'm healthy other than the issues stemming from the PKD, so once I have a working kidney, I should be feeling much better. But I know there's a lot to adjust to beyond that with new meds, surgery healing, etc. But since I have not met with the surgeon, I have no idea how long the surgery takes, what happens right after - do I just go to a regular room? How long I'll be in the hospital, what's the pain like, how do I wean off the pain medication I'm on, when will I be out of the hospital, how soon could I do computer type work from home, how long should I plan to stay out of work if everything went perfectly as a 50 year old woman who is not overweight, never smoked/no drinking /no street drugs.
What can I be doing now to prepare for this transplant, etc? They say it's their protocol to not meet with the surgeon until right before, so I guess I'll just need to hope Google is accurate and get information from people who have already had kidney transplants.
My Dad had one in 1984 in the same hospital, but it was a cadaver donor, he was very sick for the 10 years following the transplant until he died :( everyone promises me that things are so much better now than then and that my story will be different.
Anyway, I'm looking forward to getting to know you all and I hope I am able to learn some things and then eventually help others in the future. Thank you having me here!