Yes, Hello, I am Michelle, I had a kidney transplant 1 year ago. I am on the anti-rejection meds. I have a go round with them. But continue. I have a black spot when I look out of my left eye. Been to the doctor, but know that this is a side effect of meds. They say it will go away, but not sure. After I take my evening meds M eyes get really swollen and red all around my eyes and puffy. I get to the point that I can no longer read. My right eye drops sometimes. My check up say my eye site is the same. But these complications are from meds. I also am losing my hair. I have tried Super B vitamins as suggested by the transplant team. I have been afraid to cut or color my hair. I am on 10mg of steroids daily. My sugar runs high and I am on a low. Carb diet to try to stop form having diabetes.
I know I am blessed to have a kidney and I should not complain. But I do not want to say anything at home to my husband. He has had to put up with so much since my operation. So I am letting it out here. I pray for strength to put up[ with all things, but my spiritual feelings seem to have been affected also. I would rather stay at home than go out. Which is what i have done for a good bit.
I have nerve problems I have never had before too. Like Hip Bursitis, Bruising on inside of my knees from sleeping with my legs resting on each other. I also have gained about 10 lbs over a years time. my AC1 is 6.4 and they say I am pre-diabetic. I have never had problems with sugar before. I have seen a dietician but still not sure what to eat. Fruit has sugar, Bread has carbs. ?
I am better than when at first I came out of surgery but my GFR is still only 50. Cre=1.1 my team says that is fine. I am hoping tat they will be able to lower meds soon. But do not know.
I also get sores on tongue and I use Nystatin for that. I get blisters on my mouth but they do not last long. I get different things. I had one doc tell me in the ER when I bent over and my back just became extremely painful. that With the meds I am on with low immunity that any cells in my body could be affected at any time. Now I had some sharp pains in my new kidney yesterday and I am going for a culture. I wish I had a better handle on what I can do to help my body. I do take CBD Pure Hemp OIl. I do not think I could stand all these side effects without having this supplement. My docs know I am on CBD and they tell me it is good for transplants.
At night after my second dose, I burn up on my backside. Sometimes I awaken soaking wet in the middle of the night, but that is getting less & less.
I also do not sleep well. I am writing this because I want others to know what my side effects are and see if they have any of these. Blessing to everyone who is on the journey of a new life through transplantation.