Overcoming COVID?

Hi All:

 

I am 6 1/2 years out from a successfull kidney transplant and have been great in 'isolating' or just going out at odd times.  Neither my wife or I have had COVID.  I am curious if any of 'us' (transplant patients) were unlucky enough to catch it and what happens?

 

Is it a prolonged 'flu-like' symptoms at home?  Hospital?  Are our Rx's adjusted?  How long did it take to recover?

 

Just curious on any real world experiences?  I sure can't find any on Google.  Also, I was (past-tense) aprt of the JohnsHopkins study, but when they had be go for labwork and it took 2 1/2 hours door to door (delays at the not so close center) and they didn't test for anti-bodies, I bowed out.  I was quite dissapointed - if they are not testing, then what good was it? 

 

I've had 3 shots and based on prior anti-body tests, I had very low-levels of anti-bodies whih I suspect have been 'beaten up' by one of the anti-immune Rx's I take.  That is an assumption.

 

Thanks & just curious.  Still bathing with hand sanitizer and voluntarily restricting some movements which I don't see changing.

 

Thanks -

 

George

 

 

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Replies

  • Sumit-

     

    Glad to hear you're improving/ improved.  Thanks for the info, I'm encouraged that their seems to be bit of a 'reasonable protocol" and most importantly I've not heard any cases of rejection.

    Stay healthy.  Kind of seems as if this is mostly inevitable like catching a cold.  My only one was 5 years in.  The longer we all go, the better the process will be refined.

     

    Thanks & good luck

    George

     

  • Hi George,

    I'm 2.5 years post kidney tx. Non hypertensive or diabetic history. Double Vaccinated 

    I'm currently in fifth day since onset of symptoms. Unfortunately despite our best precautionary efforts my wife tested positive the week prior, we knew then it is a probability that we had to be prepared for.

    My Journey so far

    Day 1 - Very mild sore throat on getting up and fatigue through out the day. 

    Day 2 - Body Ache and High fever kicked in the evening.

    Day 3 - Consulted my Nephro. Doc removed myfortic from dosage and upped prednisolone. advagraf dosage as is. Told to keep close check on fever and O2 concentration

    Same symptoms through out the day 3 with persistent fever every 4-5 hours.

    Day 4- Fever down to low grade every 10-12 hours. Body fatigue less

    Day 5 - No symptoms. Little cough.

    The Doc mentioned that once completely out of the woods, will bring prednisolone back down gradually and re-introduce myfortic.

    Wish you & your family the best of health.

    Thanks,

    Sumit

     

    • Thank you for posting, Sumit! 

      I am glad you came through this event and are getting stronger. For others with more morbidities, Tx centers are offering Monoclonal antibodies injections to speed recovery and forgo hospitalizations. 

  • Thank you.  Just curious if there is a specific regime for "us".

  • Hey George,

    I haven't got any variant of covid but I've had a few transplant friends contract it.  2 were before vaccines were available and I have to say 1 died and the other was close, but pulled through.  Basically they had to restart their rehab process from scratch.  

    The other that got it was after they were vaccinated had a much better experience although still difficult.  They were double vaxxed at the time they got it but was able to get the monoclonal antibody treatment.  While they still suffered, they didn't suffer as greatly as they would have without the vaccine or the additional treatments. Minimal protection is still better than zero. 

    In regards to paxlovid, I see it has some adverse interations with tacrolimus (among other drugs I take) and I'm currently awaiting some additional information regarding how the process works if I do get covid from my transplant team.  

    In regads to the vaccines in general, I'm currently on my 4th shot and try to stay as diligent as possible. I feel I can't do much more to stay safer than I already am and I always shake my head at people, especially TX people who don't get the vaccine.  I've yet to hear a legitimate reason not to get it (besides medical, which is very few).

    Stay safe everyone and I wish you well

    • Thank you for your post, Mike. Stay Well!

  • Thanks for sharing and I'm happy to know there is some sort of regimine if 'we' get it.  

     

    Still keeping my guard up.  Good Luck All.

     

    George

     

     

  • Hi, I consider myself still recovering from covid as I am not yet back to "normal." I am 65yrs old & a double transplant recipient, liver & kidney, 6 1/2 yrs ago.I ended up getting covid a few days after Thanksgiving. Dec 6th was 1st time I went to the ER. After chest xrays they sent me home as the hospitals here in Milw. WI are over crowded with covid. However, an ambulance came for me on Dec 12th & this time they kept me. They took me completely off my immune suppressants & put me on an anti viral while checking my labs 3 times/day. Normally I take cellcept, prograf, ursidol & prednisone. After being off my meds for 3 days, the gave me half my prograf dose. After 5 days they sent me home with 2 more days of anti virals. After that was done I went back on prednisone & my complete dose of prograf but they kept me off of the cellcept until 5 days ago! So, I was off of cellcept for a month! I wish I could've stayed off of that because between cellcept & covid, I am losing hair like crazy! (Realistically it's a small trade off for my life but...😔)

    So, my symptoms were initially a slight headache & scratchy throat. The progression of symptoms included entire body aches, overall crappy feeling, nausea occasionally but no vomiting, fluctuating fever & blood pressure, uncontrollable coughing, muscle weakness & fatigue. The last two I am still kind of dealing with. For me it changed almost daily! One day I'd feel like I was getting better, then the next day I'd feel worse again. I never lost sense of smell but did kinda lose taste. Things just didn't taste right. I am finally getting that back. All in all, it was scary & awful & lasted longer for me than everyone else I know who has gotten it.

    • Thank you for posting, Diane! Sharing experiences is what this site is all about. I hope you are well, now.

  • Thanks & Good Luck.

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