Prograf to Belatacept

Hello, 

Due to uncontrolled prograf level for over a year now, my doctor decided to switch me from Prograf to  Belatacept. 

I wanted to check how are you feeling after switching from Prograf to Belatacept  ? 

I see many posts regarding Belatacept here and I am comfortable now that it is a much better medicine (atleast better than prograf ) . 

Thank you all. 

You need to be a member of TransplantFriends.com to add comments!

Join TransplantFriends.com

Email me when people reply –

Replies

  • Hello Amit, 

    I switched from Tacrolimus to Belatacept about 5 years ago... smooth sailing and no side effects. My baseline creatinine has also decreased. Like you, i was having problem with Tac dosing as I am an athlete and my metabolism changes frequently. I was also having Tac side effects including neuphrotoxicity. No problems with Bela.

    We are all different, with different suitabilities for different regiments. Rely on your doctor's advice. I provide my experience as encouragement rather than medical advice. 

    • Thanks David. My creatinine is also decreases little bit. Lets see how it goes in long term.  Probably I will be able to join crossfit again after full transition.  

  • Hi, 

    How is belatacept working out for you so far?

    • Hello Jenny, 

      I am in transition period in which I am having infusion once in 2 week. I had my 2nd infusion done yesterday and reduced  prograf dosage.  So far I did not notice any change but will update you after few months. 

      Thanks. 

      • Thanks so much for replying. Hope all goes well. Belatacept sounds so promising. I have uncontrolled prograf levels as well and am experiencing many side effects. I want to try Belatacept but my transplant center is against it. 

        • yes I have been facing problem while maintianing prograf level since 1 year.  What is the reason they dont want to switch to belatacept  ... Cost ? or EBV Virus ? 

          I am sure your transplant center have better plan for you.  

This reply was deleted.

Facebook & instagram

TransplantBuddies & Friends Facebook Group

TransplantBuddies & Friends

Transplant Stories

Members Stories

Twitter

COTA

Lung Transplant Foundation

Cystic Fibrosis.com

        Organ Donation Surprising Facts

Latest Activity

DAP1122 (Don) posted a blog post
7 hours ago
DAP1122 (Don) posted a blog post via Latest Activity on TransplantFriends.com
7 hours ago
Suzanne Story replied to Mushfequr's discussion Protect kidney from tacrolimus damage
7 hours ago
Suzanne Story replied to Mushfequr's discussion Protect kidney from tacrolimus damage via Latest Activity on TransplantFriends.com
7 hours ago
More…

Planetary Biosciences for Cystic Fibrosis

Please Donate for CF Patients