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  •  Why does taking tacrolimus hurts kidney. I was taking it since 3 years everything is good and my creatine level always in  stable .My doc didn't even said about this I want to  know what happens if we take tacrolimus.I will ask my doc when I visit  hospital. I always drink more water and keep hydrated everytime. Please guyz let me know wht happens if we take tacrolimus

  • Hello,

    Tacrolimus does scar the kidney I was told over time . I'm just about 4 years post Kidney May .
    For a year now I've been off Tacrolimus Now doing an infusion every 4 weeks of Belatacept ( Nulojix) takes less than 90 mins . The first 6 months you have labs done at the same time.  Less side effects and much better drug .. 
    Suzanne 

    • Hello Suzanne, Why was the change made?

      • Hello Juan , 

        I was having issues with the cellcept (depression)

        2/12 years of it . They told me it was the prograf over and over .. But turned out it wasn't prograf It was cellcept, by then I was over taken both meds!
        I wanted something new better and not make me a f'n crazy depressed person!! 
        I still take a low dose of prograf.5 MG with the belatacept .  Sooo much better 💯 % 

        im a human again lol 

        take care

        • Hi Suzanne,

          I am glad to hear you are feeling better with the change. I was never given Cellcept, it has always been Prograf from day one almost twelve years ago. Last year I started to have elevated blood sugars and I was told that with time Prograf would do that, I am not sure about this yet but interestently enough so did my sister who also has a transplant. My Nephrologist retired this past January and I am not 100% convinced with the new guy's expertise. I would probably have to go back to the Transplant Center for follow up's which is 3-4 hours away if I drive. Not sure what am I going to do just yet.

          Stay safe.

    • Hi

      I didn't know about this - Are you in the US?

      • Yes I am . Cedars-Sinai is the best place !

        They are really amazing ❤️

         

         

         

  • Thanks everyone

  • Agree with KB - the first  action is to follow a core Kidney diet, which I generally follow.  

    I had a Liver Tx (and was on Heart Tx for a while) but it all damages Kidneys. CKD3.  I know every Nephrologist I have spoken with hates Tacro, but keeps me alive.

    I eat a bit more protein than I should as my body hurts so much, I supplement it and plant based.  Potassium is a killer to watch for so between Potassium and Sodium I created a list of foods implemented a new daily diet, not just a trial but generally eat from that list.  I also barely eat sugar and stay hydrated.

    I only supplement Magnesium and D as is pretty normal for many.

    Good luck.

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