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TACRO level

Hi Everybody!

I am 1 1/2 yrs post kidney transplant.  I take only 1 mg of TACRO twice a day and 250mg of Cellcept twice a day. I am on a steroid avoidance program. My WBC count has remained low at avg 2.8 throughout. Neutrophils about 1.5 on avg. My transplant team is OK with that and my labs look good.  Creatinine is .97.

Yesterday my TACRO level dropped from its norm of 4.9 to 3.1.  I did not miss any doses.  Nothing in my routine changed. We are remodeling our home and I have been more physically active and. to be honest, more stressed.  I understand there can be fluctuations and they will probably just recheck in a week, but I still feel nervous a bit. Could anyone give me some thoughts on this? I am learning more but still feel new at all of this.  With a low white count I do not have much room to add more medication that will drop it farther.

God Bless and have a wonderful, healthy day!

 

 

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Replies

  • I just hit my one yr mark today for my liver and tomorrow is my kidney. I too am going through this same thing still. My white count dropped way low so they took me off the celcept. I’m now on pred along with tacro. I take 5mg pred in the am and 7mg tacro in the morning and 7mg at night and still can’t get my levels adjusted correctly. Along with about 15 other pills. I’m so pilled our it’s not funny. They said at the 1yr mark they’d start to drop off, but it seems like more keep getting added. I feel your pain and confusion. But as they say, not everyone has the same body and the response as everyone else. Everyone is different. Each transplant is different. So hang tough. Stay strong. And ask as many questions as your heart desires. I ask and I get the look from the drs sometimes cause I’ve asked the same question at each appointment. 

  • The first question that comes to mind is what is the tacro level range that your team targets?  My doctor wants me to be between 3 - 5.  Also, they won't make a change based upon one reading.  Another thought is the results could be an error - I have had that once over the years.

    I am a liver transplant patient.  I also had a drop in my tacro level from my nomal of 4.5 to 2.5 at year six.  No changes that I could reconcile and no missed doses.  I finally had to have my dose adjusted. 

    For six months after transplant, I too had a WBC that fluctuated a tenth or two above or below 3.0.  My team also was OK with that.  Mine finally settled down after my cellcept was lowered at the six month appointment. 

    Don't get two stressed.  Your team will guide your through this.  They have options to keep you well.

     

     

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