I had a liver transplant in July of this year and I am trying to understand the follow up process. My son donated a part of his liver so I was not quite as debilitated as many prior to surgery . My procedure was performed at the University o Maryland Hospital. I was under the impression that the transplant surgeons who performed my procedure would continue to be my team and follow me post operatively until I was transferred back to my heptologist and then yearly visits with surgeons .
It seems that the surgeons are only following my progreas for 3 months and then they want me to follow up with hospital heptologist. When I questioned why not just following with my heptologist I was told that the hospital providers had access to the pathologists etc. I am not really buying this explanation Perhaps because I have not experienced any overt signs of rejection I am not appreciating their caution.
I have been very fortunate that my problems post op have been able to be managed with changes to my medications. My white count was just about wiped out by the anti virals and myfortic. Once discontinued they are improving . I also have developed Post liver transplant diabetes now taking 5 injections daily and finger sticks 6 times a day. I feel I have gotten off easy after reading some of the problems others have experienced .
I would appreciate any feedback from other liver transplant members about how there follow up providers were determined. Thank you