Good afternoon everyone! First off I would like to say thanks for the add and I’m excited to be part of this community. Just a quick intro of me.. my name is Zack, I’m 29 years old and suffer from PKD. I am now in esrd with a gfr of around 6. Currently doing automated PD and it’s keeping me stable.
I’m working with Henry Ford here in Michigan to get a transplant ASAP from a living donor. My full blooded brother went through testing and was considered compatible and we thought all was good. Unfortunately, they noticed he has 3 arteries in his kidney after the CT scan. This resulted in them denying him as a donor for me. Even though he cannot, we are in the paired exchange program where they actually found me a match from a living donor, and also found a recipient that can except my brothers kidney. We are currently testing blood and doing the cross match to see if it’s a go. My fingers are crossed and my prayers are many!
I would really love to get some insight from people who have been through this process. Has anyone went from PD to a transplant and what were the main differences? I’m just concerned I’ll have more issues with the medication and such from the transplant than I do on PD currently. PD really isn’t all that bad. I hook up at night and it does the dialysis while I sleep. I feel pretty good and live a pretty normal life. I’d be lying if I said the whole thought of the transplant and the procedure doesn’t scare me some. I’ve never had a major surgery where I’ve been knocked out and had to go through a rough recovery. What is it like? Is it really not that bad as I’m imagining? Lol is there a ton of pain afterwards, is it hard to adjust to the medication? How soon after surgery are you usually able to get back to a normal routine? I work full time and depend on my employment to make a living.
Please provide some info on the kidney transplant process and I will forever be grateful! :)