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I had my transplant at Papworth 9 years ago and have been extremely well since. At my 6 monthly check up last week I was given the news that it is starting to reject, mainly due to high blood pressure.
As I care for my wheelchair bound husband who has suffered strokes as well as has numerous other medical problems, this is going to cause major disruption to both our lives.
I really have no idea where to start, or what to do.
If anyone has had similar problems please would you share your solutions with me?
Thank you in advance, and the best of health to all of you.
I am also 9years out. This is concerning Let us know what happens. I will keep you in my prayers.
Anyone out there living with Coronary Artery Vasculopathy?
One year out on 3-11-2018. Just completed 1st annual eval. Did e extremely well until day 3,when this issue raisedised it’s ugly head. Have not found anything particularly encouraging yet. Won’t get to see Dr. till next week. In the meantime I am concerned as to % present vs statistics I’ve read in medical articles.
I wanted to reach out as I am wondering what is in front not of me in what appears will be round 2 for me.
My daughter had her heart transplant Dec. 29 2013. During our time in the hospital waiting for her gift of life, I kept a daily journal. Since then I have turned my journal into a book. "Strength in a Heartbeat", Diary of a Heart Transplant. Reason to create the book, I wanted to help other families going through the same journey, something they could relate to. They are not alone. It is a lonely life living in a hospital. We spent close to 18 months, pre-transplant and post-transplant. www.strengthinaheartbeat.com Please check it out, and share.
Thank you for sharing your book. I look forward to reading it.
i had my heart transplant 11-24-1994 from a 24yr old male at Temple University Hospital
Congrats Jeremy, how are you doing? I had my HT on 12/5/16, at UCSF in San Francisco. Got a heart from a 26 yr old guy. Try not to think about the process too much, but each day the miracle becomes greater and greater as I become more and more active. Did an 8 mike hike last Saturday, uphill, in canyons etc, no problem. All you can do is smile, smile, smile! Each each day. Cheers!! JB.
That is great! I love to hear these stories. My HT was January 21, 2017. Things are all smiles for me too
Hi Robert! I received mine on January 21st! (2018). Guess that makes us Twinsies!! :)
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