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  • I had my transplant at Papworth 9 years ago and have been extremely well since. At my 6 monthly check up last week I was given the news that it is starting to reject,  mainly due to high blood pressure.

    As I care for my wheelchair bound husband who has suffered strokes as well as has numerous other medical problems, this is going to cause major disruption to both our lives.

    I really have no idea where to start, or what to do.

    If anyone has had similar problems please would you share your solutions with me?

    Thank you in advance, and the best of health to all of you.

    • I am also 9years out. This is concerning  Let us know what happens. I will keep you in my prayers. 

  • Good morning!

    Anyone out there living with Coronary Artery Vasculopathy?

    One year out on 3-11-2018. Just completed 1st annual eval. Did e extremely well until day 3,when this issue raisedised it’s ugly head. Have not found anything particularly encouraging yet. Won’t get to see Dr. till next week. In the meantime I am concerned as to % present  vs statistics I’ve read in medical articles.

    I wanted to reach out as I am wondering what is in front not of me in what appears will be round 2 for me.

    Thank you.

  • My daughter had her heart transplant Dec. 29 2013.  During our time in the hospital waiting for her gift of life, I kept a daily journal.  Since then I have turned my journal into a book.  "Strength in a Heartbeat", Diary of a Heart Transplant.  Reason to create the book, I wanted to help other families going through the same journey, something they could relate to.  They are not alone.  It is a lonely life living in a hospital.  We spent close to 18 months, pre-transplant and post-transplant.  www.strengthinaheartbeat.com Please check it out, and share.

    Lynne Robitaille 

    Lynne M. Robitaille
    Author, Organ Donation, Heart transplant, story of heart transplant, donate life
    • Thank you for sharing your book. I look forward to reading it. 

      Lynne M. Robitaille
      Author, Organ Donation, Heart transplant, story of heart transplant, donate life
  • i had my heart transplant 11-24-1994 from a 24yr old male at Temple University Hospital

    • Congrats Jeremy, how are you doing?  I had my HT on 12/5/16, at UCSF in San Francisco.  Got a heart from a 26 yr old guy.  Try not to think about the process too much, but each day the miracle becomes greater and greater as I become more and more active.  Did an 8 mike hike last Saturday, uphill, in canyons etc, no problem.  All you can do is smile, smile, smile!  Each each day.  Cheers!!  JB.

  • So I am almost 4 years out and my feet hurt everyday. My feet did not hurt before transplant. Some of it is neuropathy but gabapentin doesn't help I take 1800mg a day. Also been to the podiatry doc also.
    • I’m 2 years out and have the same experience. I went to the podiatrist last week and he recommended insoles. Let me know if you find a solution and I will do the same. Until then let’s continue to enjoy the life God has Blessed us with. 

    • So I have since my first response been proven wrong and a wonderful neurologist explained to me why my feet pain started when I woke up and had neuropathy which I never had prior to transplant! Lookup critical illness polyneuropathy. It happens to ICU patients that are critically ill and in my case  high doses of steroids caused my blood sugars to go sky high! I dealt with ketoacisosis because of it. What happens is your body is thought to produce a systemic inflammatory response that effects peripheral nerves and that why my pain was rt away and I had neuropathy that nobody could explain . So now when sugars are out of wack it’s like fueling a fire cause you e instantly been progressed to the 20 mark of someone with diabetes!

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