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  • Hi, I am a kidney transplant patient and am suffering from food poisoning after eating chicken from KFC on Sunday. The diarrhea has been running like water up to 20  times a day and only slowed down yesterday. But every time I eat something like dried toast it goes straight through me. Can anyone help?

  • Hi .

    KPTX October 02, 1992

    All is good....

  • Hi everyone! Anyone who had kidney transplant and use probiotics ? Is it safe for us?.. i took 1 erceflora (bacilli clausii) 5ml oral suspension  (my transplant doctor told me i may or may not take it, its fine w/ her) after having diarrhea. Woke up w/ extreme headache after taking it that goes away after taking paracetamol. Now my diarrhea is gone. Creatinine is .80 few days back..but now i’m peeing frequently ( had 4L +of water /day) no extreme activities such as excercising due to vertigo... i’ve read some articles that probiotics had pro’s & cons for transplant & immune supressed patient so now im terribly anxious! Need advice please..thank you.

  • I am very new here and curious if anyone has had just a pancreas transplant.. I've been type 1 diabetic for 20 years... I'm on an insulin pump and not on any dialysis.. my kidney levels are slightly elevated but doctor says it is not a concern yet.. any thoughts..?
    • I had lost my kidneys in 2014 they said of combination of prograf and from the damage diabetes had already did to them before my pancreas tx. You will be on higher doses of prograf and prednisone at the begining which can play apart of being harsh on you native kidneys that may be compromised already.


    • I got a pancreas tx in 2002 and then in 2014 a kidney thats when it failed, i did my pancreas before waiting for my kidneys to fail only because i started to lose my eyesight, if that is a possibility or concren of your eye doctor i would most defineatly get a pancreas tx, It was hard, but after i recovered i had my freedom back from diabeteic conditions getting worse. I had lost my kidneys 


    • I had a kidney/pancreas transplant 9 years ago. I had Type 1 Diabetes as well. I was on the insulin pump. The diabetes is what caused my kidney failure. It was tough going through dialysis because it made me sick because of the diabetes. Now I do not wear the pump or have to do anything that deals with diabetes. But not everyone gets that lucky. Some still have to take insulin and check there blood.  I also had other complications that were caused by Type 1 diabetes. Now I have a second chance to enjoy life. It was all worth the sickness and other conplications of  Diabetes.

  • Hello all,

    I'm 3 years 2 months post transplant & came to the conclusion the other day I felt better, more radiant & vibrant 18 months ago. My bloods are very stable. The only things I seems to be struggling with are moods thanks to prednisone & premature ovarian failure (diagnosed last year just as I turned 41 -all due to the immunosuppressive meds, thanks) & quite a bit of fatigue -mild anemia- and general disinterest in life. Not hopelessness, just kind of lack of ability to be interested in anything or motivated to do anything, and yet I am bored stiff!

    My doctor just says snap out of it and go for a run, set a goal every day and achieve it etc. He refuses to treat with HRT or anti anxiety meds or antidepressants. 

    I guess I am just not happy. But also not unhappy or ungrateful. So has anyone else gone through this too and what did you do to beat this kind of thing?

    Thanks, Marilee

  • Lori Westphal May 14, 2017 at 5:12pm
    My 20 year old daughter received a kidney almost 7 weeks ago through the paired exchange. She has been doing very well. However, 3 weeks after the transplant her creatinine shot up to 1.7. She was admitted back into the hospital and put on IV fluids over night. By the time we left the hospital the next day it was back down to 1.2. We assume she just wasn't drinking enough. It has fluctuated between 1.2 to 1.3 ever since. She had a blood test last Monday and it was 1.25, and she had another on Friday and it was 1.35. Her coordinator wants her to get another blood test tomorrow. I get so worried when this happens. My daughter is calm, and never worries She also saw an urologist last week to make sure that her bladder isn't affecting her kidney function. She hasn't been fully emptying it. She has a test scheduled in June to rule out any problems along those lines, but the urologist doesn't think there will be any problem. My question is, is this all normal for the first few months after transplant? I get so fixated on the creatinine level. I wish it were just in the normal range and woud stay there. I panic every time it goes up. What have other people experienced? Also are there any other parents out there who have had a child go through this? She's not a little kid, but she's not totally an adult yet either, and we are having a real tug of war about me being on top of her to drink and what not, and her telling me she's got it all covered. Thank you for any advice.
  • Hi I'm new here. <br />
    Had my transplant march 2016. Now I have notice gfr is declining. Doc said not to worry but now my creatine has elevated. Has anyone expieeenced this. I'm worried about rejection.
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