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  • Hi. My creatinine is high and the doctor told me that I have a kidney failure and should decide on the type of dialysis to do. I decide to select PD dialysis at home and will need to go the hospital for one day to insert a tube in the abdomen. Dialysis will start once there is clear signs. The doctor told me a lady was prepared for PD. Now it is six months and dialysis didn't started yet. It might take four to six months till the signs appears for dialysis. In the meantime I am trying to see if there is a a compatible relative donor available. Is it better to have a pre-emptive transplant before doing dialysis? What type of dialysis is better to have?

    • Welcome Jamal to Transplant Friends! Hopefully, you can avoid dialysis altogether, with a Tx. If one of your relatives offers to donate and is a match and is healthy enough to do so (the donor's health going forward is a priority.) Even if they are not a match, you can receive a Tx through a Paired Match Program, where they can donate to another, who is waiting, and you will receive a Tx from someone, who IS a match. 

      Which dialysis to chose, if you must wait, is a personal choice, based upon availability and how each fits your needs and lifestyle. Hemodialysis (in-clinic,) where all is done for you, in a sterile environment, is what was done for me, twice for many years. Its cons are rigid diet and water restrictions, surgery to provide an access, time spent traveling between treatments and some side effects (parathyroid issues and others.) Where Nocturnal hemodialysis is available (as I opted for waiting for my second Tx,) where you would be dialyzed (in-clinic) overnight. though the treatment is longer, it is close to having a Tx, with fewer restrictions or side effects and better clearances. PD dialysis can be performed at home, usually overnight and some patients do very well with it. Cons would include access surgery and a higher risk of infection for some.

      These are some ideas to think and ask your doctor about. I will say, I did not like dialysis, and receiving a Tx was more preferable, allowing me a more normal life, though it has its "cons" too. THIS IS YOUR LIFE AND YOU MUST CHOOSE THE WAY YOU WANT LIVE IT! Good Luck

  • Hi Jimmy, My wife was my donor, my pain level was really minor.  The doctor said her pain was going to be  a little more, her surgery was laproscopoc with a 2 inch incision, she said the pain was uncomfortable but bearable. They wanted to know if she wanted to go home the next day!!!  however everyone is different with pain management.  We had the transplant at New York Presbyterian Weill Cornell Medical. I wish you and your brother long life and good health, your a good brother!!!! You will really fell good about saving his life.

    My eGFR just before surgery was 7, after 8 months my eGFR was back at 57  not bad for a man that is 74.  When he gets the kidney, in 24 hr he will feel much better and after a few days he will  really be  felling better. I have not had problems with the medications, no bad reactions, a few minor blips and medication adjustments

    good luck

    Warren

  • Hello. I’m going thu tests now to be a live doner to my brother. His kidneys are at 11% and all tests so far have been successful. I’m gonna obviously go thru with it but just wondered how much it hurts before and after? 

  • Hello everyone, 

    I am 3 months post transplant after waiting 8 long years for a kidney. I am super happy and blessed to have received one and I feel like I have a new lease on life but, is it normal to have survivors guilt so early on? I want to enjoy it and be happy, but I'm still sad about the donor and donors family. Almost kind of feeling as if I didn't deserve it. 

    • oh, dear Lyche
      I felt same as you when I got my trnspltkidney . The guy who donated me his kidney was poor because of our bad economic. and he had to sell it .but I think this is the fait. so lets think positively . donners gave us lifes cause they have been chosen as best creatures by almighty god.
      wish you be good.

      • Thank you Sadoo. I hope all is well with you. Many many blessings and good health for you and your kidney :)

    • You didn't cause your donor's passing and you are complying with their last wishes. In addition, accepting this gift may provide some measure of solace to the grieving family, knowing their loved one's passing benefitted another. I have done this twice, knowing all this, I still have some of this feeling from time to time.

      • Thank you for your kind words. This is my second transplant as well. My first transplant was in 2010 from a living donor (my cousin). Unfortunately that only lasted about a year. I started seeing rejection signs early on. The doctor told me it was because of my lupus and my anti-bodies. I felt HORRIBLE because I felt like my cousin donated for nothing. But he reassured me he didn't. Because it allowed me to be off of dialysis for at least a year. I hope and pray this one lasts a very long time. And so far so good. Hope your well. 

  • Had my kidney transplant on. 11th apirl 2018 after the transplant my creatinine level was 1.1 and after 1 month my creatinine increased 1.3 to 1.6 now my creatinine is 1. 7 and my tac level is 5.9 I m taking pangraph 3.5 .. 3.0 no infection no flu but creatinine is up day by day please advice me how to lower my creatinine level 

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