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  • Hello Everyone 

    new member here. I had my transplant in April 2016. Everything is doing ok. Had a few battles along the way. But nothing recently. Wanted to share some thoughts. I have known my kidney doctor for over 20 years. But recently I have been thinking about finally getting a primary care doctor also. Thoughts??

     

  • I had 4 biopsy’s in the first year the actual procedure only takes about 15 minutes but after you will be told to lay flat in bed for two hours and stay near the hospital over night. My problem ended up being prograf toxicity after lowering the dose the kidney function came back I am now nearing 11 years since the kidney transplant I hope yours does well.

  • Hi! Anybody here who had undergone kidney biopsy after kidney transplant? Im 1 yr. post kt, had my labs 2days ago my crea went up from 0.8 -1.00 and egfr went down from 90% to 77%.. had rbc on urine that goes up & down from 1st day of transplant up to now. .. im scared that i might be having mild rejection, my tx team recommends kidney biopsy anytime soon..

  • Hi i just had transplant 7/5/2018. Im confused, scard not sure on my insurance whats going on. Received a bill for medicare part b , but medicare kept telling me i wasnt elgible. They have done nothing for me but now want almost 600 and i still don't have a card. I have been paying 600 a month for cobra and not sure who should have been picking up tbe bill. Confused and depressed.

  • I have 1-1/2 of kidney transplant . My problem is that my ankles from both legs are swallow for two days . I am taking 3 mg of tracolimus twice a day and 250 methaphenolate twicw a day ,5 mg prepdisone, blood pressure med, vitamin d .

     

    also anybody is taking forteo for osteoporosis 

    regards

    betty

  • Hi! I had my kidney transplant on 19 May 2018.

    Everything is ok , except the glucose levels  which are above 200 2 hrs post meals. Regulating by taking insulin before each meal.

    • If you are taking Tacrolimus and prednisone, this is a common side effect.

       

  • Hello- My husband received his TX on 9/28/2018. He is home now & I am having trouble getting him to eat. Foods he loved before the TX (i.e. - roast turkey breast) he says 'tastes funny'. He asks for plain cooked oatmeal - which he has never eaten in 20 years. A TX coordinator said that this could be likes/dislikes of the donor - she has seen it before. Has anyone else ever heard of this? Thank you.

    • Simply put, NO. Some of the medications we take can produce a "metallic" taste, but I haven't heard of a transplanted organ taking over recipients likes or dislikes. I do remember this effect being temporary, while my body adjusted to them or when meds or doses changed. What meds is he on?

       

  • Good Day,

    I am coming up on my 1st year after TX. Kidney boy did help me greatly I'm explaining my eye condition. It seems I am one of those people that experiences  every side effect of the anti rejection. Meds.

    This week I bent over and pulled my back so badly that I ended up in the Er in Extream pain. It has been  Over 20 years since I have had back pain. I have noticed before this thT when I lay on my side to sleep I awake with pain in my hip from sleeping on my side. Off & on muscle pain in my lungs & up our back. 

    I ask myself if I am not grateful enough to be alive and receive the chance to live? My personality has changed and I do not want to be around people. I mark all of this up to depression. And know I am Blessed. I just do not feel it lately. 

    God bless every transplant patient.

     

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