TransplantFriends.com

Comments

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  sadoo shirzadi May 30, 2015 at 4:14pm

  after 3 months taking Cell Cept my doc decided to stop it because of some problems that it has with my body. now its 2 years am not taking cell cept and am good .
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  Bettylou December 23, 2014 at 11:58pm

  Has anyone suffered hair loss as a result of taking myfortic? If yes, how big a dose? I thought my hair loss was from prograf but I quit that a month ago and hair is still falling out massively. Am taking 720 am and pm each.
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    Rob B. > Bettylou February 1, 2019 at 1:18am

    Prograf,for me started 2 years after.Now after Close call with death Adenovirus the Cidofovir is making me a shedding dog LOL.I hope it grows back,if not hey Were Alive Cmon!

    https://youtu.be/RssdiSvFnS0
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      Jeff Cutler > Rob B. February 1, 2019 at 3:25pm

      Myfortic was added as "precaution" 2 years ago.  With my Tacro.

      2 weeks later horrible Shingles.  That has now extended to FibroM.  TX team has tried not to connect the two but pretty obvious I was over immunosuppressed.

      Regarding hair, I lost a lot during the process.  One I got off the main med.  Two I tale 5k mcg of Biotin OTC.  My hair has grown back (on my head) and have really strong nails lol.
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  Judi December 3, 2014 at 10:26pm

  I was on Cell Cept for quite a few years with no problems.  About two years ago I switched to Myfortic because my insurance company wouldn't pay for the Cell Cept anymore.  No problems until recently.  Now it makes me nauseous and I suddenly  throw up if I take more than one pill in the am and one in the pm.  :( 
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  Peter December 1, 2014 at 5:25pm

  I use to take Cellcept after my double lung transplant , but 10 1/2 yrs. later I could not tolerate it.  It caused extreme diarrhea , so the doctor prescribed me Myfortic and all is back to normal. I will have my 12 yrs. transplant done the 19 of December.
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    Rebecca Lynn Hall > Peter February 21, 2015 at 2:03pm

    Hi Peter, what is this 12 years transplant you write about?
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  humminbird April 27, 2014 at 10:43pm

  I take 6 Myfortics a day..I am doing fine on it.. Almost 5 years since transplant...
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  Carol Johnstone January 10, 2013 at 12:11pm

  i have been on myfortic 1400 once a day for 9 weeks now im ok with it hasnt really caused me any problems that ive noticed xx
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  Doug January 7, 2013 at 11:36pm

  I was on valcyte for 3 months after transplant. About a month later I came down with CMV. They put me on 900mg twice a day for 3 wks. Second week in I am starting to feel better. Still worry about the long term effects on my kidney. I had my 2nd transplant on August 9, 2012. My first one worked for 18 years.