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I am my husband's living kidney donor. We are aware of the effect that prograf can have on blood sugar, but he has experienced something wierd that I hope someone here has heard of before. He's been a type 2 diabetic for years. After his transplant, 18 months ago, his insulin was increased several times. About six weeks ago, his tacrolimus level, which is normally maintained between 5 and 7,shot up to 19! At the same time, he began to have occasional hypoglycemia episodes and now his long acting insulin (Lantus) has been cut by about 1/3. After reducing his tacrolimus dose to 0.5 mg twice a day, his tacrolimus level is back in range. None of his docs can explain this, and we don't know for sure whether one caused the other. Just wondering if anyone has heard of such a thing before. Thanks.
Hello...I am new here, too. I am 10 months post kidney transplant and have been doing extremely well. I have two problems....the first one is that I cannot seem to lose the 40 lbs. that I gained while on dialysis. I work out with a trainer and exercise every day in some way, shape, or form and I am on a proper diet, limiting carbs and sugars and drink lots of water. I keep losing and gaining the same 5 lbs. every week. None of my clothes fit. I would be happy just to lose 10 lbs. at this point. Is anyone else having difficulty with gaining or losing weight since transplant? Any diet suggestions? I am 65 and very active....I teach ballroom dancing, go hiking, etc. I know that being older makes it harder to lose weight, but this is ridiculous. The second problem is that I am losing my hair, like a lot of other people. However, my hair loss started about 7 mos. after transplant. I've lost more than 1/2 of my hair and it is very discouraging. I've just started taking biotin, massage coconut oil into my scalp and leave overnight and use biotin shampoo. Does any of this ever help? I get a kidney, get my life back, then can't enjoy it because I lose my hair. I don't mean to sound ungrateful as I have been truly blessed to receive this kidney, but with the weight gain and hair loss, I don't even want to go out of the house. The doctor does not want to change the tacrolimus to cyclosporin. He says that nobody uses that anymore and it can cause hair to grow in unwanted places. Has anyone had this problem and switched meds and had a successful outcome? Without ruining their lab results, of course. Any help would be appreciated.
I on the same amount of medication you are 2 am and 2 pm. I also had some hait losss. The best thing for this side effect...... take a BIOTIN VITAMIN and you can also use BIOTIN SHAMPOO. My doctor told me about it. It helped me, I take the 5000 mcg once a day. It also helps with you nails, skin, and energy. It dissolves in the mouth. It has really helped my hair grow.
Is there anyone on Prograf & Everolimus?
I am 3 years post tx. I take many drugs including Prograf and mycophenolate.
If you are currently taking Prograf consider joining this group.
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