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  • Hello I am also new to this website and just reached my 3 months. I have had a rough time with liver transplant.  6 surgeries,  2 stents in liver to keep flow going.  7 pints blood and 2 platelets immediately after surgery because of bile duct failure.  For right now I am praying that we are good, but I go every week for ultra sounds.  Hair is falling out,  which is expected.  Skin itches like crazy and drives me nuts.  No job,  no income,  and nothing yet from SSI, but grateful to be alive!

    • Welcome to the forum! I'm sorry you have been experiencing such a challenging time since your transplant. I hope though that with time your situation will improve and become more stable. I have found the people here to very caring and supportive, and I hope this forum will also be a blessing to you as it has been to me. I send you wishes for healing and strength to face what comes. May you have a blessed weekend. 

      Warm regards,

      Bobbiejo

      • Thank you Bobbiejo. It's good to know you're not alone and others have gone thru the same things.  

  • Good morning! I wanterd to throw a question out. If I should redirect, let me know. I am 8 wks post TP. I have been doing really well other than a cold that started about 4 dys ago. I've been in touch with one of my Nurses as far as care. She said keep an eye on temp (it's between normal and 1 dg high. Looks like it's moved from head to chest. No scratchy throat. Congestion clear and moving out. All of that said, any experience with similar situations much appreciated. This used to be a 'run its course' kind of thing. Not sure with the TP. Thanks!!

    BTW, just joined yesterday. It is fantastic. So much great info! Thanks to everyone!!

     

    • Welcome to this site and congratulations on your recent transplant! I also got a liver among other organs, and my anniversary just happens to occur the day before yours although the first occurred about 14 years ago! As far as the cold goes, I would just be sure to monitor your symptoms, especially the temperature, and keep your transplant team updated especially if it gets worse or does not get better after a while. May I ask if you are getting regular transplant labs? If there is a problem, this could show something. I have gotten mine monthly for a long time. I hope this cold will soon depart and you will feel much better. I wish you the best in your post transplant journey!

      Warm regards,
      Bobbiejo

      • Good afternoon Bobbiejo,

        I was reading some of the stories and I saw where you had the same organs transplanted as myself.

        I was wondering what kind of  immunosuppression  medications you are taking? I am taking Cellcept, Cyclosporine & prednisone and I have had a problem with skin cancer, the dermatologist told me that it was caused by the meds I'm taking. Have you had any problems with this?

        I hope you are doing well & I look forward to hearing from you.

        Thanks 

        Janet

        • Dear Janet,

          I am currently only taking Prograf for my immunosuppressant, 2mg twice a day. I once also took Medrol, but that was only for about the first two years after my transplant. I am sorry that you have been experiencing trouble with skin cancer. I have not had this problem before. This may also be due to the fact that I do not tend to get out in the sun a whole lot as with my fair skin, I can burn easily. I hope that otherwise you have been doing well.  

          Warm regards,

          Bobbiejo

  • Good Afternoon! Just saw this forum today, and promptly joined. Looking forward to hearing other's experiences! I had my transplant 10/07/2019, about 8 wks ago, at UAB. (Birmingham, AL) All has been great so far. Nursing an aggravating cold the last couple days, but have already seen good advice here! Glad to be here! Many Thanks to everyone!

    • Marc,  I got my liver 12/9/2019 in Atlanta. 

  • Hello

    its my first time on this site Tx 8/24/19 all went well until about day 60 starting to get joint pain numbness and tingling feeling in legs and arms ,Tylenol doesn't do much anymore,Have asked Med to reduce som of my meds.

    Seems like I'm not the only one having this issue,lots of info on this site glad I found it.   Rudi 

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