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  • I am ten years post op.  Psc and HCC. Excellent health now, enjoing my life.  

    Tips: total compliance with provider recommendations. Set time for every 12 hr on cell phone-take all your meds every day on time. NO ALCOHOL. Skin checks as liver txp recipients' risk of skin cancer is 65 times greater than average. Reguar visits with pcp, and, as prescribed for cardiologist and others.  Healthy lifestyle: exercise, diet, sleep.  Don't screw around, life and longevity depend on our post op behavior.

     

  • I'm Janice, I just celebrated 4 years of new life after a successful liver transplant at Stanford .  I'm down to 2 mgs.  of prograf  plus 2 cellcept per day . Does anyone have up to date information on how long one can expect to live after a liver transplant. Any stories on this topic?

    • Janice-the conventional wisdom is that 50% of organ transplants last 10 years.  However, I have met individuals who are well into their 20+ years of good health after liver transplant, for example.  In a way, this number is meaningless.   Old answer: "it depends". Somewhere around 5-10% of organ txps survive less than one year.  We survivors owe it to ourselves and to our donor family to seriously take care of our health and we will be rewarded with longer and healthier lives. We can be at peace.  Txp or not, none of us know our "expiration date". Relax, enjoy and be at true peace.

       

    • After my transplant while still going to clinic I meet an elderly lady who was coming in for her 25th aniversary check up.  That made my heart soar!

    • Hi janice, there is record of Liver Transplant survivor rate above 20 years, but most of them are/were young recepients and received family donation. I am above 5 years post liver transplant patient and is on 1mg/day, no axillary medicin I am taking, except multi vitamens and Tecta.

      • Thank you Terry for your input. I appreciate you sharing your story. 

    • Expiration dates are rarely discussed by Tx teams because of advances in medication and after-care. All that is learned, from recipients like us, will aid new recipients to extend their graft, setting new records. May you enjoy many, many years in good health!

  •  Thanks for the warm welcome.  And good bless you. I can't even imagine all you've been through. You are indeed an inspiration to us all. 😀

  • Hi there. My name is Gerardo and I'm new to this site. I'm a 20 year retired Air Force veteran living currently in NJ. I signed up on here a little bit ago but didn't get on too often. I am recently 1 year post surgery. Looking to share stores and give/get advice on all topics. And ofmof coursencourse meet people and make new friends. Thanks for reading and glad to be in this group.

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