Share Your Thoughts

You need to be a member of to add comments!



  • HI, I'm new to the group and I'm 5 year post transplant.  I'm wondering if anyone had issues recovery psychologically?

    • Yes I do but it's non related I have neuropathy very bad and can't walk very good . This has got worse for four years waiting and being so sick I could not get out and do much except go into hospitals. But know I am doing great but can't walk and it pissed me off but then I feel bad for getting mad because I would not be alive at all without my liver transplant post eight months also I had two heart attacks last September and wonder if this should have gone to another.

    • Sure, it’s highly depends on family or close one, if they or he/she understand or study pre and post-transplant changes in your behaviour then must adjust accordingly, same time you must mentally understand what happened if not get a liver, so instead listen any physic thing walk and talk with Nature, and see the beauty of world, star, so on and thanks for everything done by dr. system, society, then family or close one and finally for nature who let every possible moment happened. Always do physical activities, and it’s very vital. Finally adjust food habits, and kind of food.  

  • Hello, I’m new to the group. I am currently on the transplant list waiting for a liver to become available.  My question is for those who are post transplant that was your MLELD score at the time of transplant? Thank you!

    • Mine was 15 but the continuing build up of fluid and draining twice a week was killing me so about a three year wait until the phone rang I hope your call comes soon stay on them ask questions .

    • Mine was 19, but I got 3 extra points becasue I also have Pulmonary Arterial Hypertension ... so 22 is what was used for the wait list.  The highest I got to was 27 at one point.  I was first on list for my blood type at UAB but no liver that woud fit my body size was available until a few monts later.

  • I am currently one year post liver transplant.  After recovering for maybe 8 months out I started to have aches in my bones, I went for further test and was diagnosed with arthritis in fingers, osteoarthritis in knees and bone spurs in heels.  Which I never had before my transplant and immediate after and it just hit me like boom.  Has anyone developed anything like this.  I am curious! ?? 

    • Hi in my opinion highly depend on what immunosuppressant you are taking?

  • Has any transplant patients experienced a increase in cholesterol levels after transplant? I am 2 years out and my levels have increased,just wondering.
    • Yes very much and have 5 stints placed over three occasions.

This reply was deleted.

This group is for our friends interested in sharing information regarding all aspects of liver transplantation. We are here for support.  

To create a new group discussion, choose the discussion then click on the plus sign top right of page.

352 Members
Join Us!