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  • I am six months post tranplant. I have been dealing with acid reflux nightly. It goes away when I sit up but I deal with it several times through out the night. I am talking protonix twice a day and zantac once a day. Any one else have this issue with heart burn?

    • I had a friend suggest to me using Apple Cider Vinegar, Lemon, and Honey to help. I tried it in a tea for and it did wonders for me. I don't know how much to what, but I just guessed. Hope you get some relief soon!! 

    • Thank you for the response. i did not know if that was something that anyone else has dealt with. 

    • I have had trouble with acid reflux both before and after my transplant. I find it helps if I sleep at night with my head elevated with a wedge that is shaped such that I do not slide off of it as easily as wedge that goes down at a completely flat angle. By doing this, I am much less likely to wake up with reflux or nausea. I would also suggest trying to put around four hours or so between the last time you eat and when you go to bed so that there might be less in your stomacht to bother you when you go to sleep. However, I am not in  your shoes, so just try to find the time that works better for you. It was also suggested to me to take ginger supplements because ginger is thought to havea possible pro-motility effect on the stomach as well to be anti-nausea.

      If this does not help enough, you could consider asking your doctor if a medication that may improve the stomach's motility may be of use. If a stomach empties slower than normal, this can mean that the food lingers longer in the stomach and thus can stimulate the production of acid for longer. When I was having an especially hard time with acid bothering me at night, I was put on Reglan, one of the medications that may improve the stomach's motility, and this helped me out greatly. However, I was soon put on domperidone because of my doctor's concern for me possibly developing tardive dyskinesia if I were on Reglan long term. Domperidone is not FDA approved, but with the approval of my doctor, I have been able to get it from pharmacies in Canada, for example. It helped me as much as the Reglan.

      I hope that you and your doctor are able to figure out something that helps so that you can achieve better sleep. I wish you well. 

      Warm regards,




  • Liver transplant 2/15 all is well but numbers went up this month maybe some processed food ?

  • Um. Hi there! 

    I'm kinda new-ish to the site. I'm on the Facebook page as well. My name is Janet. I had a liver transplant October 4, 1995, when I was 4 years old. (I'm 27 now.) I was born with Biliary Atresia. I'm doing good. Had a rejection scare a couple of years ago...didn't realize it until about a year later. (The doctor I had at the time did not communicate well with me.) I can't really be very insightful as I don't remember going through my transplant. I remember going into about 3 of the many surgries that I had (one of them being my transplant!). I just thought I would introduce myself. So...hi!!


  • hello everyone    i am 6 months post liver and kidney transplant.   i am doing ok but it seems to me i had alot more energy when i first got transplanted around month 3  now i am tired ofter and i have aches and pains every morning.  i am still taking prednisone but only 5 mg 5 days a week i was taking alot more at first.  i still have slight anemia   and white blood cell count is very low.  i take 8 mg of tacrolimus a day and 360 myfortic 2 times a day has anyone else experienced these symptons ?

  • Hello! I had my liver transplant April 2016. I was given Prograf and am now down to 2 mg twice daily. I gained 130 lbs within 9 to 10 months that first year due to Prednisone I was given in that same time period. I have been working with a weight loss doctor who is trying to help me with the weight problem. So far, I've only lost 11 lbs in the course of 2 months, mostly because of digestive/constipation issues I am having. 

    Anyway, I am pretty bummed out. I thought I would feel a lot better than this. When I go to the grocery store, I use one of the riding carts because I don't feel energetic or strong enough to do the whole duration of shopping pushing a cart. I am constantly fatigued. I have been trying everything I can. Does anyone have any recommendations? Help! 

    Thanks! Nancy 

  • Hello everyone. This is my first time on the site. My liver transplant was 20 months ago. I'm wondering if anyone has the many continuing side effects as I have. I'm still on the same 1500mg of cellcept daily as when I came home 14 months ago. The tacrulumus was reduced to 2mg per day 3 months ago. Other than the 60 pound weight gain and encepholopathy my worst side effects include serious pain on the bottom of my feet which stops me from being able to stand for more than a few minutes and take walks, lightheadedness and benig unbalanced, fatiuge yet insomnia. 


  • Hello,


    I am new here and have just made the liver transplant waiting list as of FEB 2018. I wondered if any here have comments on the differences between living and deceased donor transplants. A deceased donor transplant is the only option I have available.

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