Were you a member of our Forum on http://TransplantBuddies.com
Yes
About Me
Where did you hear about Transplant Friends?
In my search for others with Bronchiolitis Obliterans I found your site.
Are You Male or Female?
Female
Share - which illness led up to you needing a transplant?
No Transplant yet....I was diagnosed with Bronchiolitis Obliterans in June 2010.
Drugs, vitamins, favorite foods
Cellcept 3000mg/day Prednisone...currently 40mg/day reflux drugs..zantac & zegerid vitamins..multi & calcium & vit. D
I am Interested in Transplant Friends because...
I have Bronchiolitis Obliterans and have been told a transplant may be in my future. I would need a double lung transplant.
Which Transplant Center has or will perform your life saving surgery?
Pittsburgh
Share how your transplant experience changed your life?
I haven't had it done yet. I'm trying to learn as much as possible now in case it is in fact in my future.
Comments from Your Friends
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Comments
Happy birthday Diana !
Happy Birthday Diana, wishing that all your birthday wishes come true.
Happy Birthday Diana- May you have a wonderful day today
Happy Birthday Diana, enjoy your day. I hope you get your tx soon.
Happy birthday Diana! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pm central time. hope to see you there!
Happy birthday Diana !
Hi Diana,
I understand your comments about finding someone with the same diagnosis. You are the first that I have met. The docs are now calling it "Idiopathic BO" since they can not find any cause for it.
I am 55 and was in very good health before all of this started last year. I was first treated with inhalers for presumed asthma, but once they determined it was BO, the docs stopped all my drugs. It had progressed enough that they said TP was the only option. They knew how bad I was, but gently gave me some time to accept that. As I needed more and more oxygen, and got weaker and weaker, I called them and asked to start the evaluation. They readily agreed. Everything came at me so fast, from the onset of the illness, the diagnosis and then the TP, that I felt like a train was bearing down on me. My head still spins sometimes when I think about it all. But I have to say that the TP went very well, and I feel so much better than before TP. I could not have survived without the TP, and I have no doubts that I made the correct choice.
I hope that you have more time before the TP, and that we continue to talk. I have found that my family and friends are very supportive in many ways, but having someone to talk to who has the same disease will be a comfort to me. And I hope to you, too!
Happy Birthday to you!! Be well!
Look top left under the globe for many features on how to contact members. Click on Settings and appearance to update your profile. It is fun to learn this system. Be patient and you will figure this out soon.
Rise'