About Me

Were you a member of our Forum on http://TransplantBuddies.com

Yes


Where did you hear about Transplant Friends?

online


Are You Male or Female?

Female


Share - which illness led up to you needing a transplant?

pulmonary fibrosis


Which Organ(s) did you receive? If you are on the waiting list, please share.

Not on the list yet...Will need 2 lungs


How many years have you had your Transplant for?

Not yet


I am Interested in Transplant Friends because...

Planning a double lung transplant


Which Transplant Center has or will perform your life saving surgery?

Chapel Hill, NC


Share how your transplant experience changed your life?

Hopefully for the better!


What Part of The World Do you Live? Feel free to share city, state, country

Asheville, NC


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Comments from Your Friends

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Comments

  • Hi Lola,
    Love your name and the song L.O.L.A. Lola.....I've been trying to find "pre-lung Friends" this afternoon. And here you are. I am also in a program (at Columbia/New York Presbyterian) but I'm not quite sick enough to be added to the list. I have ILD hypersensitivy pneumonitis. I've been on O2 about 18 months now and lots of other meds as needed. And just to stay ahead of things, I'm going to put my house on the market next week. My plan is to move in with my daughter...she says it's ok, I'm feeling like I need to give up on trying to maintain my house on my own, but Catholic girl guilt makes me feel like I'm intruding in her life.

    I read one of your previous posts about weight issues. Don't know if you've had success at this point, but I gained about 30 pounds after nearly a year of 60mg Prednisone daily. My lung doc at Yale gave me the key to loosing. It worked for me. It is to cut out salt, fat, and sugar...all at the same time. It really wasn't bad after three or four days. It changed my entire shopping experience, but everything except my lungs are very healthy now. It's the combination of these three things that makes it successful. So the diet is fresh or frozen fruits, vegetables, yogurt, small portions of meat or other protein. I am on approximately 1000 calories a day, but only 5'2". I started with Healthy Choice dinners about 220 or so calories to get myself used to the portion sizes. It started coming off quickly. If I don't have food in the house I don't eat it or crave it anymore.

    Happy Halloween,
    Judy
  • Hi Lola. How do you like the rehab

  • Lol, Happy Birthday, hoping all your birthday wishes come true.

  • Happy birthday Lola! Have a great day! You should join us for chat on Saturday, Sunday and Monday starting at 3 pm eastern/ 2 pm central time. Hope to see you there!

  •  Happy Birthday Lola ! 

  • hI Lola, lovely to meet you.

  • I am an Alpha-1 Patient looking at having a double lung transplant I hope, hard to explain what I have its better to look it up. 

  • Thanks for the add on your friends list, hope things are well

  • Hi Lola. I see you are a Duke patient. Do you know about the small group we have on FB. Would you like to be added.

    Kathryn

  • Happy birthday Lola! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 p.m. CDT. Hope to see you there!

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