About Me

Were you a member of our Forum on http://TransplantBuddies.com

No


Where did you hear about Transplant Friends?

FB


Are You Male or Female?

Female


Share - which illness led up to you needing a transplant?

Sudden "viral hepatitis of unknown origin". I literally ran 5 miles the a.m. of the day I was admitted to the hospital and then became gravely ill.


Which Organ(s) did you receive? If you are on the waiting list, please share.

Liver


Drugs, vitamins, favorite foods

Tacrolimus, Bactrin, Magnesium, Baby Aspirin, Biotin are the drugs and vitamins I take. Favorite food is fat free frozen yogurt ( no plural "foods" necessary).


How many years have you had your Transplant for?

5/mos (December 11, 2017)


I am Interested in Transplant Friends because...

Community sharing and learning regarding this experience.


Which Transplant Center has or will perform your life saving surgery?

Allegheny General Hospital, Pittsburgh, PA


Share how your transplant experience changed your life?

The fact that I am alive at all is due to my transplant!


Share whatever information you want us to know about you

I have been --- and was up to my recent illness --- a very healthy person. My illness was sudden and my transplant was fast. In less than a month I got sick, experienced a hepatic coma, was diagnosed, went on the transplant list, experienced a second hepatic coma, my MELD score quickly went to 40, and I had transplant surgery. I realize how fortunate I am, and that my experience is much different from many in the same situation. There are many blessings in the fact that I did not wait, nor did I have other organs/my health deteriorate. I also did not experience the disappointment that many people have --- thinking they have an organ and then having it fall through (only 1x). There is a psychological challenge that I do cope with regarding the speed that all this happened in ... virtually overnight. It was/is surreal. I was healthy one day and then close to death the next. There has been so much to learn and cope with, and a couple of chunks of time that I can't remember. However, I'm loved and supported by my husband, family and friends. My recovery over the past 5/mos has been great; with exception to side effects from the Tacrolimus. Side effects include one experience with gout (resolved by a Prednisone taper), pins and needle feeling in balls of feet-hands-lower lip and tip of tongue, occasional hand tremors, severe headaches and hair loss. The side effects began to really escalate about a month ago. I've been prescribed 10mg of Tacrolimus 2x per day. I think about my donor every day and their family. I've written a note to them and hope they may want to connect. My thoughts for them most certainly include all positives and much gratitude.


Share your interests and hobbies

Running 5k, 8k, 10k races & 1/2 Marathons, tap dancing, gardening, reading, films, water color painting and volunteer work.


What Part of The World Do you Live? Feel free to share city, state, country

Pittsburgh, PA, U.S.A.


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