About Me

Were you a member of our Forum on http://TransplantBuddies.com

Yes


Where did you hear about Transplant Friends?

internet


Which Organ(s) did you receive? If you are on the waiting list, please share.

n/a


I am Interested in Transplant Friends because...

can't have enough resources


Which Transplant Center has or will perform your life saving surgery?

cleveland clinic foundation


Share how your transplant experience changed your life?

just the possibility has given me hope


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Comments

  • Just spent last thursday and friday in Chicago attending the COPD9 conference.  It was great.  I am still trying to digest the things I have learned

  • Hi Orlan, I'm trying to be a better friend on this site, but to be honest, I have a heck of a time trying to find things here. I think you posted to be friends in October and I just found that today....maybe I need a special class to uncover all there is to this site.

    So I've read you story about trips with EMTs to your local hospital and to Cleveland Clinic. I'm in a similar situation with my local hospital being where my primary internist is closest to my home, about six miles. My primary pulmonologist is at Yale about twenty miles away. And my transplant hospital Columbia/NY Presbyterian is 56 miles miles away, in some of the most frustrating traffic in the country. Going that 56 miles can take 2 to 6 hours depending on how lucky you are that day.

    I have my next transplant team appointment on January 15, next Wednesday. My heart is beating a bit faster just thinking about it. Guess it's the never knowing for sure what might be going on. I just did my PFT at Yale in December. So this appointment will include the six minute walk again. My goal is to continue being in the program, but not on the list. I think of that everyday when eating and exercising as long as possible. I've had to up the O2 to 4ltrs now....seems every three to six months it increases....so keeping my fingers crossed.

    Take care,
    Judy
  •  Happy Happy Birthday Orlan ,  May all them there ghost and goblins give you an extra spiecal day ! 

  • Happy Birthday to you Orlan

     

    I am so happy you are living and breathing with new lungs. You have so much to be grateful for.

  • Happy Birthday Orlan, Have a Great Day/Night. Enjoy life.

  • Happy birhday Orlan! Have a great day! You should join us for chat on Saturdays and Sundays starting at 2 pom central time. Hope to see you there!

  •  Happy Happy Birthday Orlan !!!

  • Congatulations to you Orlan on receiving your precious new lungs.

     

    How are you feeling?

  • Thanks for adding me
  • HAPPY BIRTHDAY TODAY AND MANY MORE!

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