Hi All! I am finding myself at the end of my rope. I feel my joy for life has been replaced by pulling it together for the sake of my family, as I have no joy in myself. I have been very sick and it seems like it's one snowball after another.
About two months ago, I thought I had a potential cadaver match. That fell through as the blood type didn't match up. Shortly after, my blood pressure chose to bounce out of control. We are talking 220's, My nephrologist sent me for catscans, angiograms, etc. to check for adrenal tumors. No tumor. So, then she sent me to an endocrinologist, that basically said my nephrologist was reading the report wrong and that while my aldosterone level was elevated, so was my renin level, which cancels one another out. The 66 aldosterone level was actually more like a level of 10 when renin was figured in. Naturally, that made me question who was right and who was wrong.
Then I went to my transplant facility for an annual visit and they confirmed the endocrinologist was right. Good in the end I guess, but it really makes me question the doctor I see for regular care.
While all this is going on, I have a ray of hope at a potential donor. We were set to meet next week for tissue matching, but ........wait for it......
I developed a rash Sunday on my leg. Long story short, SHINGLES! AGAIN!
REALLY?????? Does it get any better?