About Me

Were you a member of our Forum on http://TransplantBuddies.com

Yes


Where did you hear about Transplant Friends?

This message on my inbox


Are You Male or Female?

Female


Share - which illness led up to you needing a transplant?

I was born with only 1/4 kidney function of one, the other was not there- so I had lots of hospitalization, care, high-blood pressure and my health care was somewhat managed my need for transplant at age 32.


Which Organ(s) did you receive? If you are on the waiting list, please share.

I have had two kidney transplants. The first in 1994 through my brother who donated, and the second I was on the cadaver list for 3yrs with difficulty in being a match, so I was put on the pared donor list. My son was not a match but could donate to another so with 8 recipients and 8 donor's in the live donor transplant swap, I received my 2nd live-donor kidney in 2011.


Drugs, vitamins, favorite foods

Cellcept, Prograf, Atenelol, Allopurinol, Magnesium, Omeprazole, Bactrim, Lasix, baby aspirin,Ambien, Hydrocodone-as needed, Vitamin D, IV iron as needed. Many others during other times.


How many years have you had your Transplant for?

17yrs for the first one, and 2 years since the second one.


I am Interested in Transplant Friends because...

Of the support both ways for me and and to help/share with anyone dealing with the side effects of the transplant meds they have to take, the anticipation of being on the waiting list, and the everyday sometimes grueling path of dealing with post-pre transplant, or organ failure, and so many other limiting challenges of having organ failure, yet have hope of life.


Which Transplant Center has or will perform your life saving surgery?

UPMC Starzl Transplantation Institute, Pittsburgh PA


Share how your transplant experience changed your life?

Since I was born with only one forth of one kidney and lived so many years on limited health I really didn't know what true health was like, until years later my brother donated his kidney to me. I remember waking up- something I had so much difficulty in doing all my life. I was so fatigued all my life I missed every Friday of my 12yrs of school due to exhaustion from the 5-day schedule and I just couldn't work a full day without the rest of the day sleeping. I missed out on so much due to that, so after that first day after transplant- I felt life- energy renew me! I had breakfast and was awake for it! I could go a full 12 hours without sleeping. It was amazing. I will never forget that feeling from that first transplant. I just felt so responsible to do my absolute best at the life that was given me, and use it to help others to the best of my ability, and feel the same way after this second transplant.


Share whatever information you want us to know about you

My first transplant was living related with few problems. Forth year post-transplant I moved to Scotland, and shortly went into moderate rejection and had to be back in the states within 24hrs. It took me many months to recover from that episode but my kidney was spared and I went on to keep it for another 14yrs. The second kidney I have had more difficulty in keeping, going into rejection in the first year, and on a heavy regimen of immunosuppression. I went into Neutropenia and isolation (immune system completely got wiped out) and so now trying in the last two years to balance all out with lowering my immune system but not too much to get neutropenia, but not too little to go into rejection.. This last year I have been ok, but the meds are life limiting. I am living my new-normal and adjusting accordingly on the side effects of my medications. We have moved back to the states close to family and closer to the transplant clinic.


Share your interests and hobbies

I enjoy writing, journaling, photography being with the grandchildren, leather crafting, jewelry making, card making, arts and crafts, sharing our barn for our neighbors horses.


What Part of The World Do you Live? Feel free to share city, state, country

Near Pittsburgh, Pennsyvainia


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Comments

  • Welcome to Transplants Friends Suzanne. And try to join us in the chat room at 3pm est. daily, Saturdays and Sundays at 3pm est. Take care.

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  • Hi Suzanne

    Thank you for taking the time to fill out your profile! It is always so nice to read about our members. Consider sharing your story again by clicking on Blogs at the top or down the right side of pages. We have a blog list and then you can have your own blog list. Take care, Rise'

  • Hi Suzanne. Welcome to TransplantFriends!
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