About Me

Were you a member of our Forum on http://TransplantBuddies.com

No


Where did you hear about Transplant Friends?

Through Thomas Kappler


Are You Male or Female?

Female


Share - which illness led up to you needing a transplant?

An auto-immune condition. They thought sarcoidosis until recently - but maybe Systemic Lupus Erythmatosus or internal scleraderma or alveolar protenosis. The biopsy of the old lungs ruled out sarcoidosis but didn't give any indication of what it actually is.


Which Organ(s) did you receive? If you are on the waiting list, please share.

I received a double lung transplant on the 4th of December 2013.


Drugs, vitamins, favorite foods

Prograf, Prednisone, Septra, Pantaloc, lasiks, clobazam, metropolol, R-CHOP chemo, calcium, vit. d, magnesium and a few others


How many years have you had your Transplant for?

9 months


I am Interested in Transplant Friends because...

All the support and friendship.


Which Transplant Center has or will perform your life saving surgery?

Toronto General Hospital (University Health Network)


Share how your transplant experience changed your life?

It has extended my life. It has shown me the kindness and generosity of many many people, many on this site but from all over. It has further jaded my opinion of the medical system (even though there are many wonderful people working within it). It has medicalized my existence but hopefully once some of my complications are dealt with I can work on not letting it do so.


Share whatever information you want us to know about you

.


Share your interests and hobbies

I'm mainly down to books, tv and movies now. But used to love rock climbing (even though I was terrible at it)


What Part of The World Do you Live? Feel free to share city, state, country

Ontario, Canada


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Comments

  • Dew... Thanks for all your kind words!
  • Hi Dew,

    I am a two time kidney transplant member, the 2nd happening last week(I'm still in a rehab hosp.)  I was wondering if you would like to talk sometime.  I know how overwhelming the wait can be and I pray you will receive your "gift" soon.  I do not know  much about lung Txs, but I have waited for both of mine for long periods.  I sent you a friend request.  better days are ahead for you even if it is not plainly evident now.  Stay well.

  • How are you holding up Dew.I wish you the best and hope your transplant chimes through ASAP.Have a wonderful night.
  • I hope your wait ends soon.I'm still doing pretty good.cts are clear and pfts pretty good though they're down from baseline.I don't even know what is wrong with me.praying for you.
  • If you have any questions regarding energy medicine please ask.

    If you like to read I would buy the book "Energy Medicine" By Donna Eden

    http://www.transplantbuddies.org/tbx/messages/29187/11510.html?1370...

    Check out my blog here.

  • Hi Dew

    Just saw your message regarding energy medicine. What did you do to increase your pft's? No doctor should act like their patient is crazy. What did he or she say?

  • Welcome to Transplant Friends Dew. And try join us in the chat room 8pm est daily, Saturdays and Sundays 3pm est. Good luck on a donor and take care

  • Hello Dew, welcome to tx friends, glad you joined. I hope you receive a donor very soon, best of luck. Take care.

  • Hi Dew

    Welcome to Transplant Friends. I can answer some of your lung transplant questions.

    Take care of yourself

    Rise'

  •   Greetings Dew , Welcome to Friends ! 

This reply was deleted.

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