Were you a member of our Forum on http://TransplantBuddies.com
No
About Me
Where did you hear about Transplant Friends?
word of mouth
Are You Male or Female?
Male
Share - which illness led up to you needing a transplant?
liver disease - Primary Sclerosing Cholangitis
Which Organ(s) did you receive? If you are on the waiting list, please share.
liver
Drugs, vitamins, favorite foods
Rapamune 3mg daily
How many years have you had your Transplant for?
7 months
I am Interested in Transplant Friends because...
I want to learn from the experiences of others who have been through this illness and transplant process.
Which Transplant Center has or will perform your life saving surgery?
University Hospital, London Health Sciences Centre, London, Ontario, Canada
Share how your transplant experience changed your life?
I would have died within a few weeks of the transplant date without it. My energy level is now higher than for the past few years and my memory has improved even more.
Share your interests and hobbies
Promoting organ donation, building an off-grid vacation camp, rock collecting, travel, and just living each day.
Comments from Your Friends
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Comments
I found a business card in my desk. Kathy L Clark
Community Developement Volunteer Program Manager.
Office 510-273-6704
kclark2@ctdn.org She is with the California Transplant Donor Network Maybe she can help.
o
There is an organization called Donate Life. CTDN.org
1-888-570-9400 Check them out for volunteer work and instruction. Welcome aboard.
I'm from Canada, so other than program differences between London and Edmonton, its pretty much the same except for funding and research. All in all, they are both rated very well, at least what I've heard from a professional standpoint. Thoughts?
Hey Elreyfeo! I got your web-page link and email address. Thank you for that information :)
I will read through the site and see about creation of a Northern Ontario site, given the Niagara Region as reference. I will be quite busy at work till at least the end of this month, but will see how it goes. Thanks again - Matthew -
Hi! Elreyfeo, I am interested in hearing more about your organ and tissue donation page for Waterloo and Wellington. I would like to carry - on the info from your pages to include both Sudbury and North Bay, possibly Timmins, for the Northern, Ontario Region. Please send me your link and I will re-post my story on that page as well! - Matthew -
Hi Elreyfeo!
Yes, I ran for the Kidney Foundation walk/run for Kidney Research, locally this past August, raising more than $200 in the short-time I had to do fundraising. I also promote fund donations to the local kidney dialysis ward, having recently donated a painting, which promoted funds through the Catholic Woman's League. To date, I have collectively raised over $2000 in support of the North Bay Regional Hospital - Neprology Department.
I signed up for organ donation at least one year ago. I have submitted applications to the local Kidney Foundation and signed up to be a mentor of people under-going kidney problems with The Kidney Foundation of Canada.
I have added many kidney donation pages to my facebook page, shared donation postings, which allows my many friends to see the causes and areas that I support - when it comes to organ and kidney donation. Hope that answers your question :)
Hi Elreyfeo,
You have an excellent sense of humour. Glad to hear you are well.
I had liver cancer when I was 11 years old. It was treated in Toronto, Ontario - at Sick Kid's Hospital. I went through 1.5 years of chemotherapy treatment for 2 weeks at a time. I also had juvenile diabetes at that time. I SURVIVED THE LIVER CANCER, WHOO!! :)
It brought me through a 9+hour operation, near a month of max-dosed radiation treatment and one more bout of chemo, before I was in remission! MEGA STUFF!
2 years later, I developed high blood-pressure, and I have been on dialysis treatments - waiting for a kidney and pancreas (K&P) transplants to help me through! Any questions, I'm willing to help you understand...anything! ;)
Liver cancer was fist-sized when extracted.
Welcome elreyfeo
Sounds like you are living your life to the fullest! Good for you! You are an excellent role model for many of us. If you have any questions about this site look at the header My Place and all the tabs that follow. Take care, Rise'