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2014 Hope & Perserverance

2014 = Perseverance and Hope

The last 6 months of 2013 where filled great changes in my life.  I had my liver transplant, July 2 , a day that will forever be etched into my mind, it's the day my life was saved, by a young women, only 24, and my Surgeon and his team.  

Recuperating from my ordeal has taken longer than I'd hoped, but that's because I was so sick and toxic before the surgery and after the surgery was over I almost died from being allergic to the anesthesia ( malignant hypothermia) a rare reaction.  So I am still recuperating.

During this time mother was very ill and I was not able to be there for her when she was in the hospital 2 hours away, they released her without notifying any of the family, me or my sister.  The hospital was sending her back home and she died from a heart attack not 10 min. from that hospital, on Oct. 24, 2013 she died with out me there by her side with total strangers. I will never be able to forgive myself  or the Midwest City Memorial Hospital.  When she died a part of me died too.  I miss her so, but I know she is in a beautiful place and not in any pain anymore and she knows I love her and I feel she is watching over me and cheering me on like she always did.

Then in December right before Christmas when the big Cold and freezing weather came, my beautiful Horse Jadar, whom I have had the privilege to be my friend for 25 years, died of colic, I could not save him either.  My heart was completely broken.

Right after Jadar, my husband of 32 yrs, John, went get have an angiogram done to see into his arteries for any blockage they saw that the plaque in his arteries was about the same, but his ascending aorta was twice as big as it should be and he would have to have open heart surgery immediately, which he did on Jan 2(exactly 6 months from my operation) 2014.  He made it through Thank God, and we just came home on the 16th of January.  He is doing really well considering how hard a surgery it is, they had to open him completely up.  But I an so thankful we caught it, because if it had burst he would have died instantly.  I could not survive that and God knew.

Out of all that has happened I definitely have a lot to be thankful and grateful for and I have hope for the future.  I am setting goals for myself, to better myself. I am going to start to take Yoga soon, I am taking a free Philosophy class from O.U. on line and just trying to take deep breathes and live one day at a time and enjoy it and all the people around me for all it's worth. It's one step at a time and I still have days when I get frustrated and have to check my self and my attitude, it's easy to feel like the world is on my shoulders, but it's not, I have friends and family who love me very much and with their love I am truly blessed.

Peace and Love to All

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MY DAY WITH HOPE

Last Friday, the first of October, I spent a most wonderful day with Hope. Hope is my sixteen year old friend from church. I cannot describe the beauty of this young girl for she is beautiful both inside and outside. She stands about 5'3” with dark shoulder length hair, light olive skin, warm hazel eyes. For some mysterious reason I have been chosen to be her “best friend” which is a great honor to me. Friday was a gorgeous Fall day. The sky brilliant – the sun bright - a warm breeze ushered us on our way as we left Hope's house and headed off to Coeur d'Alene, Idaho, for lunch at Red Robin. She had a “big whopper” of a hamburger, and I broke the rules and gorged on french fries. Oh my, those forbidden fries tasted so good. Now Hope is a talker, and so am I, we lingered over an hour talking a mile a minute. I have to admit by the time we were ready to leave I felt sixteen again. As we were ready to leave the waitress asked Hope, “Is this your grandmother?” She answered, “No,” this is my best friend – a higher compliment I will never receive.

My precious little friend and I found our way to downtown Coeur d'Alene and the famous Hagadone Hotel that sits on beautiful Coeur d'Alene Lake. Like teenagers we cruised the tourist stores in the hotel. Hope holding on to my hand nearly every step of the way. When she wasn't holding my hand she was holding on to my arm. We decided we couldn't afford the gift shops so hand in hand off we went to see what main street offered. We stepped into a small  covered mall and right before our very eyes was this scrumptious little Candy store that had jars and jars of candy – way too much temptation! Once again I broke the rules. But. My little sack of candy was sugar free. With candy sacks in hand we strolled main street talking, eating, laughing and investigating every store both sides of the street.

We ended this wonderful day walking the boardwalk that sits on the lake and circles the hotel. It is such a magical place – the scenery is out of this world – the mountains – the sea gulls – the boats. It was the perfect ending to a perfect day as we talked of Hope's dreams for her future. I can't count the times that Hope told me how much she loves me and how much I mean to her. I was able to reciprocate her feelings and told her how grateful I am that God has sent her into my life. We spent six hours together and not once did I feel my years or think of my illness. Blessings often come in small ways and large packages. The blessing of this day will always be in my heart. There will be many more precious experiences with Hope – after all we are best friends.

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Transplant Foundation June 2013

 

JUNE 2013
NEWS & UPDATES
A monthly newsletter to keep you informed.
TRANSPLANT NEWS
Any positive news in the transplant community feels like a win for us whether it's local, national or international. This summer has kicked off with lots of news on all fronts and we're excited and motivated to continue our mission.
Locally, here in South Florida transplant programs are growing, changing and expanding. Making more options available to patients and opening this area of medicine  to greater awareness and research opportunities.
Nationally, last week Sarah Murnaghan, a 10-year-old Pennsylvania girl with cystic fibrosis  whose family fought to have young children prioritized for adult organs,  received new lungs. You can read more about her story here.                                              
Internationally, the transplant medical world is now expanding into increasing quality of life as well as saving lives, by enhancing and increasing transplants beyond organs to hand transplants especially for children. It will be interesting to see what develops there.
The transplant waiting list keeps growing, but thankfully organ donor registrations have also thanks to education initiatives. However, o
nly about 45 percent of adults in the U.S. -- nearly 109  million people -- are organ donors. It is estimated that if everyone  became a registered organ donor, it could double the number of  transplants each year.
All the good news creates momentum for the transplant world. Here at  Transplant Foundation, Inc., we are working diligently to continue to  educate the community about organ, eye and tissue donation as well as  doing everything we can to assist transplant patients in need.
Our  mission is more important than ever. We hope you join us in continuing the good news!   
UPCOMING EVENTS
Education Forum- Saturday, October 26th, 2013, Riverside Hotel, Ft. Lauderdale.
Miracle Walk/Run 2013 - Saturday, November 16th, 2013; at Zoo Miami Holiday Party- Sunday, December 8th, 2013; at Signature Grand, Davie.
*For sponsorship opportunities, in-kind donations, event volunteer signups, and ticket purchases; contact our office at 305-817-5645
Tabitha's Wish- An Inspiring Story

April of 2011 my little girl Tabitha at the young age of 12  went to the DMV to get a state ID so she could open a checking account. At this  time she had never been sick a day in her life other than a common cold. As she  was getting her ID they asked her the same questions as if she were getting a drivers license and asked her if she would like to be a organ donor and she said yes. She overheard the man in the booth next to her  say no and on the way home she asked her mom " why do you think that man said no  to becoming a donor?"
One week to the  day Tabitha went into a coma from a rare brain bleed . Within days they told us  there was nothing they could do for Tabitha and she had passed away. They asked  us if we would like to donate her organs but Tabitha had already answered that  for us.
Because Tabitha had never been  sick and her body had no trauma she was able to donate all of her organs and go  on to save 7 lives and help many others with her gift of life  .
This past year has been the toughest  year of my life by far. The one thing that has helped me get up every day and  live my life other than my son... is knowing it was (TABITHA'S WISH) to give the gift  of life.
One week shy of a year of  Tabitha's passing, I met the little girl that received Tabitha's lungs. I cannot  put into words how that has helped with my hurt other than it was like a ton of  bricks off my back.
So in closing I  would ask that you share Tabitha's story with your kids . Perhaps by telling  them this story they can make the decision to also give the gift of life if  their time was to unfortunately come sooner. By doing this, it may give you  great peace as a parent..like it did so for me.
Thank You,

Duncan K. McLindon

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National Foundation for Transplants

Transplant Talk June 2013
Dear Rise,
Welcome to the June issue of Transplant Talk!
If you are running low on NFT brochures and information, or if you need to update your contact information, e-mail us at info@transplants.org. We'd love to hear from you.
Thanks for all you do to assist our patients!
Patient of the Month: Mark Leatherman
When Mark Leatherman was just 13, he was diagnosed with Berger’s disease, which had already begun damaging his kidneys. The doctor told his mother Mark’s kidneys would likely fail in about 25 years. That time has come, and doctors say a kidney transplant is critical to his survival.
For Mark, who has spent most of his life dedicated to health and fitness, battling such a debilitating illness has been a difficult adjustment. He began competing as a bodybuilder when he was 16, and he has been a professional personal trainer since 2000. These days, he can barely get out of bed, and he feels that he looks unrecognizable.
To read more about Mark or to make a donation to assist with his expenses, visit his personal fundraising page
For questions, please contact your state's fundraising consultant:
Kay Horne, ext. 104 khorne@transplants.org
Laura Hughes, ext. 103 lhughes@transplants.org
Claire Prince, ext. 120 cprince@transplants.org
All consultants can be reached at 1-800-489-3863 and their extension listed above.
May Transplant Recipients
We're thrilled for our patients who received transplants during the month of May!
Last month we announced the launch of a sister organization, Raise Hope for Cancer. If you missed the initial announcement, click here for details.
If you have a loved one or friend facing a cancer diagnosis, please share this information with them, as we're here to help. They can visit the RHC website for more information.
Kidney Donation Webinar June 18
The Living Kidney Donor Network will be hosting a free webinar on Tuesday, June 18, at 7 p.m. CST to help educate those who are in need of a kidney about living kidney donor options. For more information and to register for the webinar, click here.
Dates to Remember:
Monday, July 1: Online registration opens for NFT's Raise Hope Golf Classic
Monday, October 7: NFT's second annual Raise Hope Golf Classic, Windyke Country Club, Memphis
About NFT Find or Become an NFT Patient Ways You Can Help Organ & Tissue Donation Transplant Professionals News & Resources Campaign Log-In Contact NFT
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Our Transplant Blogs

I am adding several of the blogs on this website onto our forum on TransplantBuddies forum under the forum topic

"Our Transplant Blog"

http://www.transplantbuddies.org/tbx/messages/28848/586346.html?1366564229

Just a reminder to please tag each blog for example, look at words below in this message.

There is a section called Tags:  If you click on the question mark in the Tags bar it will read-

"Tags are short descriptions that let you find your posts. Separate tags with commas or put multiple-word tags in quotes, such as "San Francisco".                            

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Looking for My Kidney Hero

My dear Friend Susy - a double lung transplant survivor is in need of a Kidney Angel (O positive blood type).  If you can be Susy's Hero- contact her at susygar@aol.com Thank You So Much!